Heart Failure Patient Resources
We know how difficult it is to navigate heart failure and its challenges. We hope the following list of heart failure patient resources–that helped us during our journey–may also assist you in coping with the stress that comes hand-in-hand with heart failure illness and hospitalization.
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Books We Love:
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Heart: An American Medical Odyssey
Former Vice President Dick Cheney and his longtime cardiologist, Dr. Jonathan Reiner, share the story of Cheney’s thirty-five-year battle with heart disease—providing insight into the incredible medical breakthroughs that have changed cardiac care over the last four decades.
Heart of Iron: My Journey from Transplant Patient to Ironman Triathlete
Throughout his life, Kyle Garlett hated nothing more than losing, and he knew early on that four diagnoses of cancer could not match his spirit of competition. His appetite for victory and his love of life pushed him over his health hurdles—including a bone marrow transplant, hip replacement, and heart transplant—and into the greatest challenge of his life: the Ironman World Championship.
Stories of the Heart: Reflections on the Heart Transplant Journey : Stories of Hope and Inspiration
A collection of powerful stories told by 50 people who have been through the heart transplant experience.
Strength in a Heartbeat: Diary of a Heart Transplant
This is my journal I kept when my daughter Lauren Meizo became sick and eventually ended up needing a heart transplant.
The Nicholas Effect: A Boy’s Gift to the World
The Nicholas Effect is the story of the shooting of seven-year-old Nicholas Green. It tells how the Greens’ decision to donate their son’s organs saved the lives of five Italians and restored the sight of two others.
Heart Failure Society of America Modules:
*Check back! We are adding all modules February (Heart Health Month) through April (Donate Life Month) 2018
- Module 1 – Taking Control of Heart Failure
- Module 2 – How to Follow a Low Sodium Diet
- Module 3 – Heart Failure Medicines
- Module 4 – Coming soon
- Module 5 – Coming soon
- Module 6 – Coming soon
- Module 7 – Coming soon
- Module 8 – Coming soon
- Module 9 – Coming soon
- Module 10 – Coming soon
- Module 11 – Coming soon
Helpful Websites & Apps:
- American Heart Association
- American Society of Transplantation (or call 856-439-9986)
- Center for Disease Control and Prevention (CDC)
- Heart Failure Society of America
- Mended Hearts
- MyLVAD.com
- Organ Procurement and Transplantation Network (OPTN)
- United Network for Organ Sharing (UNOS)
- Reiki and Heart Disease
- Elaine DeJoy, Certified Reiki Energy Healer in Rhode Island
Therapist Finders:
